Tuesday, June 15, 2010

Dealing

I was recently diagnosed with Ehlers Danlos Hypermobility.  I have spent countless hours researching, and trying to understand this condition that has plagued me all my life.  We have just formally met, but the overwhelming presence has always haunted me.  

The many roles that I try to fill include a wife, a mother of 3 beautiful children (ages 6-10), a special education teacher, a daughter to a very frustrating mother who is bed bound at the age of 62, a daughter to my father who passed away unexpectantly at 63 years of age, and others.

My goal is to know what I am dealing with, and deal with it.  I continue on with my life, embarrassed by my limitations, yet refusing to be defeated.  I CAN'T be defeated.  I have to continue on with the roles, and not fail.... especially the mother role.  That is my biggest fear...

I am hoping to share resources to any who are in need.  I am "techie" to a point, and am a visual person, love order, lists, charts, anything that can help me with stability.

Resources to follow :)